Many with hemophilia endure infantilizing by caregivers, most of it unintentional. Columnist Alliah Czarielle describes how to avoid this.

Directly switching from Hemlibra to Mim8 was well tolerated in people with hemophilia A, with or without inhibitors, a study ...

Columnist G Shellye Horowitz struggles to find care for her gastrointestinal issues due to the shortage of medical providers ...

Medical gaslighting is far too common, columnist Jennifer Lynne says. We all deserve to have our symptoms taken seriously.

This piece is part of a series about how caregivers can nurture emotional wellness in their loved ones with hemophilia. Read more here. Our family’s love for live theater is a bond we cherish. We make ...

Columnist Joe MacDonald shares his practical advice for how to help a child define their identity beyond their hemophilia diagnosis.

Pausing before speaking is a good practice, especially when a delicate matter is at hand. Processing a difficult appointment or receiving bad news takes time. While you may want to process and talk ...

A study reveals that the majority of Chinese patients with hemophilia A depend on on-demand therapy, resulting in limited ...

In the first of a series, columnist Joe MacDonald reflects on the birth of his oldest son, who hadn't yet been diagnosed with hemophilia.

A caregiver needs respite from the duties of watching over a chronically ill patient, columnist Cazandra Campos-MacDonald writes.