How patients who are living with Epidermolysis Bullosa fight their daily pain and focus on empowerment across continents ...

Tayma, 9, struggles with the most severe version of Epidermolysis Bullosa, a rare, agonizing disorder that causes skin to ...

Throughout, viewers also see EB patients receiving three promising new, FDA-approved medications for the first time and get a ...

BIO International Convention (BIO2025), the world’s largest annual biotech event, will take place from June 16 to 19 (U.S.

Eddie Vedder and wife Jill share why they’ve become so involved in awareness for a rare disease in an exclusive clip from new film 'Matter of Time' ...

Musician Eddie Vedder attends the 'Matter Of Time' premiere during the 2025 Tribeca Festival, at Spring Studios, New York, NY, June 12, 2025. The documentary centers around Eddie Vedder's fundraising ...

MACE stores across Cork will play their part in a nationwide campaign to raise awareness of epidermolysis bullosa (EB).

The Pearl Jam frontman played a solo acoustic set following the premiere of a documentary about how he and his wife have ...

On Thursday, June 12, the Pearl Jam rocker stepped out for the premiere of his new documentary film Matter of Time at the ...

The FDA has approved Krystal Biotech’s gene therapy Vyjuvek for dystrophic epidermolysis bullosa (DEB), a rare genetic disease characterised by fragile skin that can split and blister even with ...

ZEVASKYN, the first and only cell-based gene therapy for patients with recessive dystrophic epidermolysis bullosa (RDEB), now commercially available in the U.S. - - Ann & Robert H. Lurie Children ...