HHS said that CMS and NIH would establish a ... autism using private data that could be used to create a national autism registry Unnamed HHS sources told multiple news outlets that the agencies ...

Federal health officials didn’t provide information about how people’s private medical data will be collected and managed.

are partnering to develop a real-world data platform in the US that some observers say amounts to a registry for individuals with autism spectrum disorder (ASD). According to the HHS announcement ...

The governor issued an executive order after the NIH announced plans to use the proposed database to discover a ...

The US Department of Health and Human Services on Wednesday unveiled a pilot program for the National Institutes of Health to tap into Medicare and Medicaid data in its search for the root causes ...

HHS said.“Ever since the registry was first announced, there was an enormous sense of fear in the autism community, and they have concerns: Who’s going to have access to data? How are those ...