Tayma, 9, struggles with the most severe version of Epidermolysis Bullosa, a rare, agonizing disorder that causes skin to ...

How patients who are living with Epidermolysis Bullosa fight their daily pain and focus on empowerment across continents ...

Throughout, viewers also see EB patients receiving three promising new, FDA-approved medications for the first time and get a ...

This month, the Holler family will be headed to the Tribeca Film Festival—which would normally be pretty heady stuff for a ...

Epidermolysis bullosa is a rare and severe skin disease where patients have fragile skin that blisters and tears. A Mt.

Eddie Vedder and his wife Jill share why they’ve become so heavily involved in the Epidermolysis Bullosa (EB) community in an exclusive clip from Matter of Time, a new documentary about the ...

A Dublin trike lover is spearheading a massive bike and trike run to rally funds for Debra, the charity aiding those affected ...

MACE stores across Cork will play their part in a nationwide campaign to raise awareness of epidermolysis bullosa (EB).

Epidermolysis bullosa is a rare and often devastating skin disorder where patients lack the adhesive proteins that hold the different layers of skin together. Each year, there are approximately ...